Active patient and parent involvement

SwissPedNet aims to increase the involvement of patients and parents in clinical research.

Key to this new orientation are patients and parents themselves: We are looking for patients and parents who are willing to actively participate and jointly develop the procedures for greater involvement. We are currently in a planning phase and are examining the procedure. 

Successful initiatives such as the Young Persons Advisory Groups (YPAGs) already exist at European level. The YPAGs are composed of children and young people who have an interest in improving health research. Members include patients, relatives or people who have participated in clinical trials.

More information you find at the European Young Persons' Advisory Group Network  eYPAGnet and the international Children's Advisory Network iCAN.